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BARRIERS AND PREFERENCES OF INFORMATION AND COMMUNICATIONS TECHNOLOGY IN PATIENTS WITH INFLAMMATORY BOWEL DISEASE IN LATIN AMERICA

Miguel Puga-Tejada 1,2, Maria Carolina Conlon 2, Renata Spiazzi 2, Maria Jimena Cerezo 2, ANA MARIA OMONTE ZAMBRANA 2, Maria Claudia Milano 2, Beatriz Iade 3, Maria Alejandra Arriola 3, German Rainero 4, Noelia Meligrana 4, Manuel Valero 5, Lucrecia Koll 5, Mauricio Miguel Martinez 5, Daniela Simian 6, Camila Maulen 6, Camila Estay 6, Carlos Garcia 7, Alvaro Bellido 7, Manuel Ojeda-Cisneros 7, Carlos Robles-Medranda 1, Hannah Pitanga-Lukashok 1, Martha Graciela Arevalo Mora 1, Jorge Baquerizo-Burgos 1, Maria Egas-Izquierdo 1, Domenica Cunto 1, Eduardo Marriott 8, Denisse Marriott 8, David Augusto Andrade Zamora 9, JUAN DAVID ESPINOZA CARDENAS 9, Karin Vlcek-Vera 10, Juan Antonio Garcete Villar 10, Jimmy Martin-Delgado 11, Yolanda Tolentino 12

Affiliations

1 Instituto Ecuatoriano De Enfermedades Digestivas (IECED), Guayaquil, Ecuador

2 Hospital Nacional Profesor Alejandro Posadas, El Palomar, Argentina

3 Centro de Asistencia del Sindicato Medico del Uruguay, Montevideo, Uruguay

4 Hospital Universitario Austral, Pilar, Argentina

5 Instituto de Gastroenterología y Endoscopía de Avanzada, Bahia Blanca, Argentina

6 Hospital Clínico Universidad de Chile, Independencia, Chile

7 Hospital Nacional Cayetano Heredia, Lima, Peru

8 Hospital de Especialidades Teodoro Maldonado Carbo, Guayaquil, Ecuador

9 Hospital de Especialidades José Carrasco Arteaga, Cuenca, Ecuador

10 Hospital Central del Instituto de Previsión Social, Asuncion, Paraguay

11 Universidad Catolica de Santiago de Guayaquil, Guayaquil, Ecuador

12 Universidade Federal do Estado do Rio de Janeiro, Rio de Janeiro, Brazil

Summary

AI Generated

A multi-country Latin American survey of 341 IBD patients found high smartphone ownership and WhatsApp use, with most patients willing to use IBD-specific mobile applications, though concerns about information accessibility, quality, and privacy persist.

Among 341 IBD patients from six Latin American countries (median age 37 years, 70.4% ulcerative colitis), 89.7% owned a smartphone and 95.3% used WhatsApp.
For IBD-specific purposes, 38.1% used WhatsApp, 27.3% Facebook, 24.3% email, 21.4% YouTube, and 21.1% Instagram, with 48% using at least one ICT daily.
Most patients expressed interest in using ICTs to seek information on self-care measures (61.3%), diets (57%), and symptoms (54%), and 91.5% would use an IBD-specific mobile application.
Only 15.8% found IBD information easily accessible, 45.7% found it easy to understand, 34.9% found it of good quality, and 25% expressed data privacy concerns.
The authors conclude that improving access, accuracy, understanding, and privacy of ICT-based IBD resources is necessary in Latin America.

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This summary was generated by an AI large language model based on the content transcript. It is for informational purposes only and should not be considered a substitute for clinical judgment. Always rely on your professional expertise and the full clinical context when making clinical decisions.

Abstract

Introduction

Information and communications technology (ICTs) include computer applications for dialogical, informative, or social use. ICTs are resources in the management of chronic diseases such as inflammatory bowel disease (IBD).

Aims & Methods

To understand their use by IBD patients in Latin America (LatAm), we aimed to assess the barriers and preferences (B&P) of ICTs in this population. From May to June 2022, 17 centers from 9 Spanish-speaking countries in LaTam were invited to participate in a survey-based-study to assess patients with IBD. A 351 cases sample was calculated. Included patients were >15-year-old, with IBD confirmed by histopathology. Patients diagnosed <6 months, hospitalized, without IBD-specific treatment, with psychiatric or oncological disease, health care providers, and unable to answer the survey were excluded. An ad-hoc, anonymous, and online survey was designed. The use of ICTs was estimated using a Likert scale. Surveys with >25% blank data were excluded; in those with <25%, blank questions were counted as such. A sample of 205 was calculated.

Results

341 cases from 11/17 centers of 6/9 countries were included: Argentina 216, Uruguay 58, Ecuador 33, Chile 16, Peru 12, Paraguay 6. Median age was 37 /28-51) years; 200 (58.7%) females; 240 (70.4%) ulcerative colitis (UC), 90 (26.4%) Crohn’s Disease (CD), and 11 (3.2%) indeterminate colitis (IBDU); 14 (4.1%) rurality; 158 (46.3%) complete secondary education, and 111 (32.6%) higher education. 306 (89.7%) owned a smartphone. WhatsApp (WA) was the most frequently used ICT by 325 (95.3%), followed by Instagram (Ig) 199 (58.4%), email 195 (57.2%), Facebook (Fb) 192 (56.3%), and YouTube (YT) 175 (51.3%). For IBD-specific purposes, the most used were WA 130 (38.1%), Fb 93 (27.3%), email 83 (24.3%), YT 73 (21.4%), and Ig 72 (21.1%). 48% used at least one ICT daily. 61.3% stated that they totally/strongly agreed to use ICTs to seek information on self-care measures, 57% diets, and 54% symptoms. Only 15.8% stated that this information was easily accessible, 45.7% easy to understand, 34.9% of good quality, and 25% were concerned about data privacy. 91.5% stated that they would use an IBD-specific application to obtain updated information on IBD and 88.6% stated a preference for mobile-availability (Figure 1).

Conclusion

IBD patients in LatAm use different ICTs for IBD-specific purposes. ICTs are means to transmit information and maintain communications with and among patients with IBD. However, it is necessary to improve access, accuracy, and understanding of such resources while ensuring patient data privacy. To our knowledge, this is the first study to describe B&P with ICTs use in LatAm IBD patients. NCT04893928.

Disclosure

Carlos Robles-Medranda is a key opinion leader and consultant for Pentax Medical, Boston Scientific, Steris, Medtronic, Motus, Micro-tech, G-Tech Medical Supply, CREO Medical, EndoSound, and mdconsgroup. The other authors declare no conflicts of interest.

Conference

UEG Week Copenhagen 2023

Topics

IBD

Submission format

Abstract

Session

PP 05 IBD (Posters)

Citation

United European Gastroenterology Journal 2023; 11 (Supplement 8)

Published

2023

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DEVELOPMENT AND VALIDATION OF A MULTIFUNCTIONAL FREE ACCESS TELEMEDICINE MOBILE APP FOCUSED ON SPANISH-SPEAKING PATIENTS WITH INFLAMMATORY BOWEL DISEASE

Miguel Puga-Tejada 1,2, Maria Carolina Conlon 2, Renata Spiazzi 2, Maria Jimena Cerezo 2, ANA MARIA OMONTE ZAMBRANA 2, Maria Claudia Milano 2, Beatriz Iade 3, Juan C. Mendez 4, Santiago Arellano-Olmedo 4, Abel Rodriguez-Santi 4, Carlos Robles-Medranda 1, Hannah Pitanga-Lukashok 1, Jorge Baquerizo-Burgos 1, Maria Egas-Izquierdo 1, Domenica Cunto 1, Martha Graciela Arevalo Mora 1, Carlos Torres-Herrera 5, Jimmy Martin-Delgado 6, Eduardo Marriott 7, Denisse Marriott 7, Yolanda Tolentino 8

Affiliations

1 Instituto Ecuatoriano De Enfermedades Digestivas (IECED), Guayaquil, Ecuador

2 Hospital Nacional Profesor Alejandro Posadas, El Palomar, Argentina

3 Centro de Asistencia del Sindicato Medico del Uruguay, Montevideo, Uruguay

4 mdconsgroup, Guayaquil, Ecuador

5 Universidad Diego Portales Facultad de Medicina, Santiago, Chile

6 Universidad Catolica de Santiago de Guayaquil, Guayaquil, Ecuador

7 Hospital de Especialidades Teodoro Maldonado Carbo, Guayaquil, Ecuador

8 Universidade Federal do Estado do Rio de Janeiro, Rio de Janeiro, Brazil